Dexter is growing like a weed! Love my big baby boy! The little guy is doing awesome developmentally. He just started holding on and playing with toys recently and I love those big toothless smiles! He turns 3 months old on Saturday and I can't believe how fast these last 3 months have gone.
I have to thank everyone who has generously donated to Dexter's surgery fund! We appreciate it more than you know! We have raised enough for our pre-op hotel stay and for some meals while we are at the hospital. We have bracelets available if you still want one.
In less than a month we go in for Dex's surgery. We are praying that none of his other sutures have fused. I'm slightly worried about the lambdoidal suture, the one on the back of the head, because his skull is starting to push back only on the left side. Hopefully it is just natural growth. I think at this point I could blame his excessive drooling on Craniosynostosis...haha.
We've had our first experience with someone commenting on Dexter's head shape. It was weird. I thought I would be more offended, but the way the comment was presented I felt worried for the other person. They said they were worried when their son had our son's weird head shape, but they said the Dr. told them it was normal. I didn't say anything, but both my husband and I thought the same thing, that maybe she should get a second opinion. I'm just dreading the day when someone does offend me with a comment. I don't know how I will respond. God give me the grace to be kind about it!
On that note, a slight rant... So what really gets me going (and I know it shouldn't, but it does) is when I am talking to someone about Dexter and his surgery and one of the first things they say to me is "but he is going to be ok, right?" I know they are just trying to help me feel better, but it makes me feel worse. So, for all of you who know a mom or dad with a child with a non-life threatening disorder, here's what that sounds like to the parents: "You're child isn't dying, so why are you worried?" I'm worried because my 3.5 month old son has to go under general anesthesia for 3 or more hours, will have his scalp peeled back, his skull broken and reshaped, and will probably lose enough blood he will need a transfusion. Yes, he will be okay, but can we all agree to say something else to worried parents? Something like "How are you feeling about this?" or "Is there anything we can do to help?" The first comment diminishes the worry and anguish of the parent and makes them feel helpless. The other ones make us feel supported and understood... Okay, you all are awesome and my rant is over.
So, what do we need? Prayers are awesome! For the doctors to know what to do and to have steady hands, for Dexter to be safe and to react well to the anesthesia and possible blood transfusion, for Eric and I to be able to not worry too much and to have faith that God will work everything to his will. As far as physical needs go, we still need some help financially and if you are willing to buy a bracelet for $10, we will get one to you! Also, if you would like to visit us at the hospital, we ask that you wait until the 8th and let us know when you would like to visit. We would love the break, I am sure!!!
Thank you all for your continued prayers and support!
Erika, Eric & Dexter
I have to thank everyone who has generously donated to Dexter's surgery fund! We appreciate it more than you know! We have raised enough for our pre-op hotel stay and for some meals while we are at the hospital. We have bracelets available if you still want one.
In less than a month we go in for Dex's surgery. We are praying that none of his other sutures have fused. I'm slightly worried about the lambdoidal suture, the one on the back of the head, because his skull is starting to push back only on the left side. Hopefully it is just natural growth. I think at this point I could blame his excessive drooling on Craniosynostosis...haha.
We've had our first experience with someone commenting on Dexter's head shape. It was weird. I thought I would be more offended, but the way the comment was presented I felt worried for the other person. They said they were worried when their son had our son's weird head shape, but they said the Dr. told them it was normal. I didn't say anything, but both my husband and I thought the same thing, that maybe she should get a second opinion. I'm just dreading the day when someone does offend me with a comment. I don't know how I will respond. God give me the grace to be kind about it!
On that note, a slight rant... So what really gets me going (and I know it shouldn't, but it does) is when I am talking to someone about Dexter and his surgery and one of the first things they say to me is "but he is going to be ok, right?" I know they are just trying to help me feel better, but it makes me feel worse. So, for all of you who know a mom or dad with a child with a non-life threatening disorder, here's what that sounds like to the parents: "You're child isn't dying, so why are you worried?" I'm worried because my 3.5 month old son has to go under general anesthesia for 3 or more hours, will have his scalp peeled back, his skull broken and reshaped, and will probably lose enough blood he will need a transfusion. Yes, he will be okay, but can we all agree to say something else to worried parents? Something like "How are you feeling about this?" or "Is there anything we can do to help?" The first comment diminishes the worry and anguish of the parent and makes them feel helpless. The other ones make us feel supported and understood... Okay, you all are awesome and my rant is over.
So, what do we need? Prayers are awesome! For the doctors to know what to do and to have steady hands, for Dexter to be safe and to react well to the anesthesia and possible blood transfusion, for Eric and I to be able to not worry too much and to have faith that God will work everything to his will. As far as physical needs go, we still need some help financially and if you are willing to buy a bracelet for $10, we will get one to you! Also, if you would like to visit us at the hospital, we ask that you wait until the 8th and let us know when you would like to visit. We would love the break, I am sure!!!
Thank you all for your continued prayers and support!
Erika, Eric & Dexter